How to tell your tell child they are not getting better

One of the toughest things other than being by my bedside through countless surgeries and putting my life in the hands of a physician that my parents had to discuss with me was that I was not going to get better. Most parents of disabled children will need to have this conversation because kids will … Continue reading How to tell your tell child they are not getting better

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Life Lessons only a disabled person can teach you

There are many life lessons that you will learn throughout your life! Some you will learn the hard way some you will never learn and continuously do the same mistake over and over again! That is the beauty of life there are so many lessons to be learned there is never a dull moment!  Both … Continue reading Life Lessons only a disabled person can teach you

Guest post: Three times inaccessibility had a negative impact on my life

  Accessibility does not end at ramps and when you are not easily accessible for a disabled person we feel excluded and it can have a huge negative impact on us. There have been a few times when Karly has had to deal with inaccessibility and today she explains how it negatively affected her. Growing … Continue reading Guest post: Three times inaccessibility had a negative impact on my life

How I learned to accept my disability

When you have a permanent disability that has no cure such as Spina Bifida it can be very difficult to come to terms with your disability and accept it. Coming to terms with your disability is so important with any disability because if you don't you will never be happy. Wishing you were abled is … Continue reading How I learned to accept my disability

How filmmakers can make movies with disabled characters better

I am always looking for new movies about disabled people but to be totally honest every time I watch one about a disabled person I am very disappointed. Filmmakers do not hire actual disabled people to play disabled characters but instead, they hire abled people to play them so that makes these movies very unrealistic … Continue reading How filmmakers can make movies with disabled characters better

How do you ask a disabled person about their disability?

Sometimes when you are out in public, you may see a wheelchair user or someone on crutches that is clearly disabled and you may be wondering what is their disability? Is it appropriate to go up to a total stranger and just ask them what their disability is? The answer is no it's not! Some … Continue reading How do you ask a disabled person about their disability?

Guest post: Parenting A Child With Disabilities What Adam Has Taught Me

About the Author: Judy Mallette is the mother of three children.  She learned very early on that children, abled or disabled, teach us more than we can ever teach them. The lessons started, and will never really end, on November 16, 1981. Her son, Adam, was a child with severe developmental disabilities compounded by epilepsy, congenital … Continue reading Guest post: Parenting A Child With Disabilities What Adam Has Taught Me

Independence is a beautiful thing

When you are disabled you want to try to be as independent as possible. Being independent makes it so you can do many things by yourself. There are a number of reasons why independence is important, and I will explain why. Embarrassment-  When you are a young disabled child and can't do that much for yourself you don't … Continue reading Independence is a beautiful thing

A little bit about me

Hello! Welcome to my blog. My name is Sarah. I am a 25-year-old girl and I have Spina Bifida. For those of you who don’t know, it’s a birth defect in which the bones of the spine don't form properly around part of the of the spinal cord. Spina Bifida varies person to person - … Continue reading A little bit about me